Wednesday, February 20, 2019

Life Changes and Adjustments

"Twas the last night before Valentines' Day and into the night,
 we were sleeping peacefully until a sudden noise woke me up."
        I thought Agustin was having a nightmare which he never does.  I nudged him and called his name but  he continued to breath in a very distressed, heavy and labored breathing.   I tried to arouse him with nudging and calling his name but he was obviously not responding.  To make it much worse, he was in a stiff position, his whole body, lying on his side and his mouth was clamped shut on his tongue which I could see between his lips.  NO RESPONSE!  I had never seen anyone in this distress and thought it was a stroke.  It obviously was not a bad dream when he could not be aroused.   It was a seizure!
         I immediately called 911 and the operator told me to stay on the line until they got there and also asked questions and told me to keep him on his side...at least he was on his side already!
I was not feeling well at all myself because I take an Ativan before I go to bed.  I couldn't imagine getting dressed and going to the hospital.  I was so tired and stressed.  
          I texted the kids just to let them know when they got up what was going on.  It was about 1:30 AM. Ruthie wrote right back because she was up with William (he was low and has Type 1) and she would be glad to come over.  When she got here the ambulance was still here.
         Well, when the paramedics came in, Agustin was still in the episode and they couldn't rouse him either.   They did their exam, hooked him up to whatever and said they were taking him to the ER.  He still had no idea what was going on nor was he conscious.  
           It was very difficult for them to get him on the stretcher because still being in the side position and so stiff, he couldn't take directions and they had trouble "bending" him.  WE are wondering how he hurt his right shoulder and left knee and assume getting through the doorways is the only way this could have happened.  They gave him Versed which calmed him down but he had no idea what had happened and why he was at the hospital.
          Ruthie went with him to the hospital, stayed all night and into half the next day (Valentine's Day).  Kathy then Paul came to relieve her.   I was so thankful for them since they didn't want me going into the hospital nor did I feel up to going there and dealing with everything that had to be dealt with.
          Agustin was in there from Thursday AM until Saturday. 
          I have not been feeling well at all lately.  Very tired and have abdominal and back pains.  My tumor marker has skyrocketed from 147 to 875 in just a month,  So, my Doctor scheduled another CT scan which showed very little change in the tumors as far as just growing very little.  However one little lesion has showed up in the liver which is new.  Along with all of this, I have been dealing with a few nose bleeds.  Never a dull moment.
          I did not take chemo this last week as was scheduled.   Next Monday, I will go into the cancer center for "Chemo Counselling" for a new pill we will try called Lynparza.   It works on the DNA on the tumors.  
          I thank all my friends and acquaintances who pray for us.  WE are very grateful for this encouragement and also for the gifts of meals.  
          To be honest, I have felt very "out of it" for praying myself.  Not that I don't believe or trust.  I do trust and believe that God is in control and loves us.  I just don't have the concentration these days to pray over a long period of time!  A friend of ours always puts it, "I will prayerfully think of you."   That is how I feel now.  When I think of you I will try to remember to pray for you:):):)  
            I appreciate the prayers for my dear family who keep us going.  We have now have some Home Health Care in place and that will help a lot.    Meanwhile, we are "hanging in" with the daily "nitty-gritty" of dealing with taking care of each other. 💓💪

No comments: