Today is a beautiful day and I am feeling tired, not very nauseated and very thankful for the very good check-up yesterday with my caring doctor, Dr. Kathleen Paul at the Pearson Cancer Center. My sister, Margie, my husband Agustin and one of our daughters, Ruthie were also in the room. I encouraged them not to ask any questions or make any comments until I was finished asking my questions and Dr. Paul was finished giving me the information. They all understand, because they love me, and they know that my "chemo brain" causes me to loose my train of thought if I am interrupted when speaking with my doctor. Or at least, that is what I call it.....chemo brain❤
I asked Ruthie (who has CML, a form of leukemia) to take notes because she is very good at that and one of my advocates in this whole process since she is also a patient of Dr. Paul's and has known her much longer than I have:)
So, here is what she wrote but transcribed by me today in my words and verb tenses:
"Dr. Paul arrived and told me of the great response I have had to this chemotherapy. We all hugged her and she us:) She will do re-imaging of my liver and pancreas on Aug. 2. MRI. She thinks it's going to look great! Traditional treatment for my cancer is still doing this type of chemotherapy as long as I am tolerating and responding well which I have!!!!
I told her at that point that my initial chemo counselling and treatment plan states 12 cycles of Folfirinox. (This treatment is made up of 5 different drugs) She does understand I wish I could stop, but this is what's saving my life and keeping me alive. (And that was said in medical terms:) We all know the Lord numbers our days. I expressed to her how sick it makes me feel. She is compassionate. She asked me about my neuropathy which I have in my hands, my throat (for 3-5 days) and my feet and legs which is all the time. She decided to limit my Osaliplatin to help with the numbing and possible other side effects. So far so good:)
A non-traditional way of treating this cancer at this point would be to have surgery or radiation. She really doesn't recommend surgery! Radiation does not treat the liver, but would give me a break from chemo. Dr. Paul did say that insurance won't cover an alternate treatment if the chemo is working.
Dr. Paul says "YES, go to Colombia" and plan the treatment around our trip!!!
Standard treatment is chemo every 2 weeks (which I haven't been doing anyway)!! It is very RARE that patients get to 12 cycles and I am doing GREAT!" It is the strongest and most toxic they give there and she has never given me the highest dose anyway, thank goodness!
So, yesterday she eliminated OSALIPLATIN and that actually took 2 hours off my treatment time there...that was a plus:) Of course, I googled what that is and the side effects and let's see what happens.
Today I will rest, eat what I can and want and try to keep hydrated.
This week has been great with meals being delivered again and I so appreciate the friends who have been able to take up Ruthie's and Kathy's offers when asked.
As far as Colombia, I am still contemplating on when and how to do the trip and keep up with treatments and getting the right reservations. The trip itself is very tiring. Getting up very early to catch planes and going through the security makes it impossible for us to do it all in one day. That part of the trip I dread. I realize we can both be in wheel chairs. (How humbling is that:) I would like to see our friends and relatives but I would only stay no more than 2 weeks! So, the trip will have to be split into times of the day and over night accommodations to make it there and back so fatigue won't be overpowering! Still thinking and praying about this!
Philippians 4:7 (The Voice)
"And know that the peace of God ( a peace that is beyond understanding) will stand watch over your hearts and mind in Jesus, the Anointed One."
Welcome to our BLOG! Familia Hermosa is what we call our family in Spanish. At the bottom of my page you will find webpages and blogs for the rest of the family with pictures. To view older entries and pictures, please click on "older posts" at the end of each page.
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