Monday, March 6, 2017

Finally updating my "Blog"

This week end was a special time for visitors from my past.  My childhood high school best friend came to visit with her husband and we had a grand time reminiscing,
I was blessed with 3 really good days of good health and even was able to make a simple dinner for them.   Or course, everyone was shocked that I felt good enough plus did not look particulary "sick" to them.   The interesting thing is that I told them if they would come at the end of this next week, they would see a completely different "sick" person.
I am very thankful that I snap back after going through such torment with diarrhea, nausea, taste changes, weakness, neuropathy in my fingers and toes and you name it.  The taste for my special PH 11 balanced water even tastes terrible to me for about a week.
Anyway, so much for that!   Will be wearing this pump until Wednesday when it comes off and I get a liter of saline Wednesday, a shot of Neulasta and then another liter of saline on Friday.
So, the big news that was "introduced" to me was that my Dr.  Paul suggested that because my Fofirinox is working so well to shrink the tumor, she told me today that there is an  Trial at Johns' Hopkins for pancreatic tumors that are shrinking fast from this particular chemo but I cannot go over 12 treatments or I would not be illegible.   She will be checking into the possibility to find out if I am eligible for the Immune Therapy.  This is quite an new slant as far as I am concerned because I never thought i would even want to go up there but since I am feeling so much better in my physically well being, I am seriously asking her to check into it to see if they would accept me.
I need a lot of prayer and support for something like this which I really don't know much about.   Also, I would like to know about side effects and how long I would have to be away from Lynchburg, etc.
So, meanwhile, I will have to have some kind of sygmoidoscopy to find out about the swelling in the rectum that showed up on the CT scan.
Today was my sixth treatment of Folfirinox!

An old choral response has been going around my head for about a week.   We used to sing it at First Presbyterian in Philadelphia under the direction of Alexander McCurdy, organist choir master.


God be in my head, and in my understanding;
God be in mine eyes, and in my looking;
God be in my mouth, and in my speaking;
God be in my heart, and in my thinking;
God be at mine end, and at my departing.



Words: Sarum Primer, 1558

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